I have taken a much needed respite this past week. I had a lot going on lately with getting the book off to the printer, starting my first Twin Cities Brain Injury Meetup, and trying to keep my businesses running (ie: pay the bills).
I do my very best to make sure I incorporate self-care into my daily routine, but sometimes I am so dang tired by the end of the day that I just don’t have the energy.
Which seems silly right?
Like, it should be important enough to “power through” it and get it done because I know it will help me. But I just can’t. If I have zero energy left, I literally have zero energy left.
I think that is what is SO hard for non brain injured folks to understand:
Our complete drainage of energy
Our inability to move forward once we hit our wall.
The average person can power through it and truck on until they get it done — us TBI’ers simply can’t.
Here’s my reality:
Sleep 8-10 hours (if i’m not suffering insomnia at the moment)
Wake up, make coffee, walk the dog
Work a few hours (if it’s a good day)
Nap 2-3 hours
Do a little more work
walk the dog, eat dinner
Go to bed.
On a good day, I can get about 4-5 hours of work done. On a really bad day, I may not be able to get out of bed — fortunately those days are far and few between for me now. But I do still struggle, and on those days I get maybe a few hours of work and that’s it. During the course of an entire day, I can only get 4-5 hours of work done!!
Now throw in cleaning the house, grocery shopping, and laundry — and I hit the wall even quicker!!
It’s painfully frustrating as a self-employed person. On the one hand I’m blessed with the fact I can choose to work when I want. On the other hand, there is no one else to do the work but me. If I don’t work, I don’t get paid. There is no disability insurance for the self-employed (well, there is, but it’s crazy expensive).
I realize I am blessed with patient clients, and the ability to finally function at a level that I can work (which took almost two years to get to).
Living and working with an invisible injury has it’s challenges. I do the best I can, and wake up every morning hoping it will be a good day!!
My self-care routine includes:
Walking in the fresh air
Functional Neurology exercises
What do YOU do to help yourself with self-care??