You can check out all 30 of them HERE.
Congrats to everyone on the list, I am honored to be included amongst such wonderful advocates!
You can check out all 30 of them HERE.
Congrats to everyone on the list, I am honored to be included amongst such wonderful advocates!
The Brain Injury Association of America has announced Brain Injury Awareness Day as Tuesday, March 20, 2018 at our Nation’s Capitol in Washington DC.
This event is hosted by: Congressman Bill Pascrell, Jr. (D NJ) and Congressman Thomas J. Rooney (R FL), co-chairs of the Congressional Brain Injury Task Force.
It is FREE to attend, everyone is welcome, and no registration is required.
Although BIAA and brain injury advocates work with Congress thoughout the year, Brain Injury Awareness Day is important because it is the one day dedicated to educating your elected officials about brain injury and how vital federal funding is to continue the Federal TBI State Grant Program, Centers for Disease Control and Prevention TBI Programs, and brain injury research conducted by the TBI Model Systems.
The Administration for Community Living (ACL) will be hosting a TBI stakeholder meeting on Monday, March 19. Please note you do have to RSVP for this meeting. ACL will also be hosting a brown bag lunch meeting on Tuesday, March 20 on Capitol Hill.
SCHEDULE OF EVENTS:
10am-2pm Brain Injury Awareness Fair
Rayburn Foyer, First floor, Rayburn House Office building.
Brain Injury Briefing
Longworth House Office Building Room 1539
Reception celebrating Brain Injury Awareness Month
Rayburn House Office building Room 2045
The very first Brain Injury Awareness Day on Capitol Hill was held in 2002, and is is hosted by the Congressional Brain Injury Task Force co-chaired by Reps. Bill Pascrell, Jr. (D-N.J.) and Thomas J. Rooney (R-Fla.). It is put on in partnership with the Brain Injury Association of America. I will be meeting with my Senators while I am in DC and asking them to join the Task Force!
1. Find your local Senator and Representatives:
– To find your Senator you can visit www.senate.gov and click on your state
– To find your Representative you visit www.house.gov and enter your zip code in the upper right hand corner
2. Send them a letter requesting they join the Congressional Brain Injury Task Force. Use this letter as a template (change out the RED highlighted areas). CLICK HERE FOR PDF
3. Include this form for them to join the Task Force. CLICK HERE FOR PDF.
4. Schedule a meeting with them while you’re in DC (if you’re attending).
Please contact Amy Colberg, Director of Government Affairs, at firstname.lastname@example.org if you would like assistance with scheduling meetings with your elected officials during Brain Injury Awareness Day on Capitol Hill.
Map Your Route
Whether you’re arriving by Metro, Taxi, or car, it is important to do your research and know where you’re going. Make note of which building you need to be at, and program the addresses into your GPS using the “walk” option, or print out maps and highlight your path. NOTE: You will need to go through security screening to enter any of the buildings at the Capitol. You can not bring in food or beverages, and your bags will be scanned and/or checked by hand. Please be prepared, and feel free to tell security you have a brain injury and may need some assistance from them.
Plan Your Schedule In Advance
Understand how much energy you’re willing to exert and plan accordingly. If you can only give yourself and hour or so, I highly suggest you put your energy towards the Awareness Fair. You will be able to meet with vendors who support brain injury awareness, you’ll meet fellow survivors, interact with the Brain Injury Association of America, and pick up some free swag to take home with you! The Congressional Briefing can get a bit long, and can be over stimulating to listen to, however, you will learn a lot and get updates on what is happening across the country with brain injury awareness, detection, and prevention. The Reception is a fun time to hang out with the new people you have just met, as well as eat some tasty treats.
Wear Comfortable Shoes
It’s important to understand that there is a lot of walking involved when you’re at the Capitol. You will walk from your car, Taxi, or Metro stop to the building, and also between the buildings. Distance is deceiving when you look at a map, so it’s good to be prepared for a lot of walking!
Stay Hydrated & Eat A Snack
Eat a healthy breakfast before heading out. Hydration is critical to brain health, so bring a water bottle and fill it up once you’re through security. There is also a cafeteria located inside the building where you can purchase beverages as well as a meal or snacks.
Bring A Notebook & Pen & Tote Bag
You will likely meet a lot of wonderful new people, and you’ll want to grab their business card and/or make notes. You will be taking in a lot of new information, and I suggest writing things down so you don’t forget, and make notations of things you want to follow up on. A tote bag will come in handy to carry around the free swag that you pick up (pens, etc).
Pace Yourself & Be Prepared For Overstimulation
Get LOTS of rest the night before. This is going to be a busy day with lots of people, walking, and interaction. Bring with you any comfort items you may need such as sunglasses and earplugs. Take breaks and pace yourself, you’re under no obligation to see it all and do everything on the schedule!
Here is a recap of the first BIA Day I attended in March, 2015 on Huffington Post: CLICK HERE
Dr. Jeremy Schmoe from Minnesota Functional Neurology and I saw a growing need in the brain injury community for more awareness and education about alternative healthcare methods and modalities for those who are still suffering from the lingering effect of brain injury.
During the month of March, in conjunction with Brain Injury Awareness Month, the summit will provide brain injury survivors with more than 20 of the most renowned specialists in the brain injury community, including doctors, caregivers, survivors, and other clinicians who are experienced in successfully treating brain injury.
The lineup includes: Dr. Jeremy Schmoe, Dr. Ryan Cedermark, Dr. Dan Engle, Dr. Michael Lewis, Mark Parrish, Sue Wilson, April Christopherson, Dr. David Traster, Drs. Erin & Elizabeth Anderson, Dr. Alina Fong, Dr. Deborah Zelinsky, Bridgett Wallace, Dr. Mario Dulay, Meg & Conner, Dr. Anne Kelly, and Dr. Ron Tarrel.
Topics include: – The Brain-Gut Axis – Rehabilitation – Patient Advocacy – Pro Athlete Advocacy – The Eye-Brain Connection – Vestibular Rehabilitation – Understanding Anxiety, Depression, and PTSD -Chiropractic Functional Neurology – Neuro Perception – CBD Oil for Recovery – Cognitive Rehabilitation – A Mother’s Perspective Of Her Elite Snowboarder Son’s Accident and Recovery – Cervical Spine and Headache Pain – Living Chronic Pain – A mother-son Journey – Apathy After Injury – Stress and Neuroplasticity – and much more
The 2018 Brain Health Online Summit is ideal for: Brain Injury Survivors, Caregivers, Loved Ones, Co-Workers, Healthcare Providers, Clinicians, and anyone interested in their overall Brain Health Function.
And best of all — it is completely FREE!
If you’re not able to attend all of the dates, no worries! Recordings will be available for purchase with a portion of all proceeds benefiting the Brain Injury Association of America.
For further information and to register: TheBrainHealthOnlineSummit.com
This weekend I had the pleasure of being a guest on Roshini Rajkumar’s “News and Views” on WCCO radio, along with Neurosurgeon and brain injury researcher, Dr. Uzma Samadani.
We talked about Super Bowl 2018 here in Minneapolis, MN, CTE, football, my recovery, Samadani’s work, and so much more!
Check out my HuffPost article highlighting all of the events and innovators in the Twin Cities that will be featured this week in preparation for the big game! http://bit.ly/2qUrbTO
Listen below and leave us some comment love!
I am thrilled to announce that my newest book is almost ready for birth!
It is currently on Kickstarter to crowdsource the funding for production costs. It will be released in March … and I am planning a Washington DC book launch party — so stay tuned!
In the meantime, I would greatly appreciate your support: please consider backing the project by pre-ordering your copy NOW! If you don’t have my first book, you can grab the “book bundle” and get both books!!
“Embracing the Journey” is a sequel to my original book “Life With a Traumatic Brain Injury” and I couldn’t be more proud of the advocacy work I am doing to raise awareness and help educate those who don’t understand this invisible injury that affects over 2.8 million Americans each year!!
Kickstarter link: http://kck.st/2m8lWuU
——-> SCROLL TO THE BOTTOM FOR THE COMPLETE COLLECTION!!! <——-
All purchases not only help YOU they also help ME continue with my advocacy work — and I thank you <3
How do I use them??
Body Mist: squeeze a couple sprays onto your body and lightly rub in.
Roll-On: Roll onto your pulse points, temples, or bottoms of your feet and rub in.
Both ways offer you aromatic benefits as well as topical!
What do they cost?
2oz Body Mist $15
10ml Roll-On $12
plus shipping/handling of $2.50 each item
(sorry, only available for US shipping)
(the roll-on is made with sweet almond oil as the carrier, so please advise if you have a nut allergy and I will substitute with grapeseed oil)
Amy’s Brain Blend is a combination of Frankincense, Cedarwood, Lavender, and Northern Lights Black Spruce essential oils, along with a bead of Crystal Quartz to amplify the energy!
Lavender is a powerful oil for calm and sleep. Use as a pillow mist before bed, or roll onto your wrists and bottoms of your feet. Includes a piece of Amethyst for enhanced support — which is full of energy for sleep!!
Peppermint is great for added energy throughout the day, as well as for minor aches and tension. Rub into your temples (careful of the eyes) or directly where you feel tension. Mist makes a great on-the-go boost; and also works as a coolant if you overheat easily! Includes a piece of Crystal Quartz to help amplify your energy!
This blend includes lemon and orange to help with mood. Orange is shown to help take us back to fond memories, while lemon is a natural energy and mood booster. Includes a piece of Rose Quartz to help increase happiness!
This blend of oregano, cinnamon, and lemon is a powerful, natural blend to help fight off germs and keep you healthy year-round. Spray on your body and rub in throughout the day, or roll onto your chest or bottoms of your feet!! Includes a piece of Amethyst for additional immune support!J
Each week I will host a Facebook Live video chat with an author. We will discuss their book, their journey, and what they’re up to next!
All you need to do is “like” my Facebook page so that the videos will pop up in your newsfeed!! All videos will be recorded and available on my page afterwards as well, however, if you can make the LIVE video you will have the opportunity to ask Q’s of the author and myself! www.facebook.com/facesoftbi
All times are CST (+ 1 hour for EST and -2 hours for PST)
Click on book titles to see more about the book.
Mon. Nov. 20th 10:30am
Cavin Balaster — “How To Feed A Brain”
Tues. Nov. 21 6:30pm
Cyndy Feasel — “After the Cheering Stops”
Mon. Nov. 27th 10:30am
Carole Starr — “To Root and to Rise”
Mon. Dec. 4th 10:30am
Dr. Michael Lewis — “When Brains Collide”
Tues. Dec. 12th 10:00am
Amanda Smart — “Grit”
Mon. Dec. 18th TBD
Nick Dennen — “23: Time to Choose”
Friday, September 15th was National Concussion Awareness Day and I am proud to say that I received a proclamation from Minnesota Governor, Mark Dayton declaring it so!
I had so many great festivities going on for NCAD, and I left for my trip to Baltimore the day afterwards so I am just now getting around to sharing them with you!
First of all, I had Dr. Stephanie Mills and her daughter, Brooke Mills on my podcast series. Brooke is an 18 year old in NH who struggled through high school with a concussion. Last year she had the 3rdFriday of September declared National Concussion Awareness Day!!
You can listen to the episode: National Concussion Awareness Day Sept. 15th with Dr. Stephanie & Brooke Mills
Additionally, Dr. Jeremy Schmoe and I held an Open House at his clinic: Minnesota Functional Neurology DC. He has helped me so much in my recovery over this past year, my hope is that everyone can find a doctor like him to snuff out their lingering TBI/concussion symptoms.
The amazing guys from Clear Edge were in town from Syracuse, NY and helped Jeremy and his staff do baseline testing in conjunction with NCAD as well! I wish I had had a baseline when I had my accident and I am passionate about this company and what they stand for in the world of concussion. More on that coming soon in a Huff Post article 🙂
Last but certainly not least, I was interviewed by Dr. Stephanie on her radio show “Half Hour to Health” on 107.7 WTPL The Pulse. She had me on to talk about my concussion journey as she extended NCAD through the weekend in NH! You can listen to the full episode below!
How did YOU celebrate National Concussion Awareness Day?!?
This past week I was on the road to Baltimore, MD where I had the pleasure of meeting with the amazing folks at Mt. Washington Pediatric Hospital (MWPH).
They brought me out so that I could write a feature story on their amazing “Adventures Abilities” program, which allows some of their youth brain injury patients to attend a 10 day camp in Park City, UT.
I had the pleasure of interviewing six of their staff members:
– Dr. Richard M Katz, Chief Medical Officer
– Christy Sands, Senior Physical Therapist
– Dr. Joseph E Cleary, Pediatric Neuropsychologist
– Susan K Dubroff, Director for Rehabilitation Services
– Lindie A McDonough, Abilities Adventures
And learning more about the hospital and their different programs:
I was beyond impressed with this hospital, which is a step-down hospital (meaning they have already been hospitalized and are now coming there to prepare for going back home). The entire staff is so incredibly kind and caring, and they have an amazingly high retention rate. They truly care about their patients and want to see them succeed in life. Once a child leaves the hospital, they continue to keep in touch with them!
The Abilities Adventures program is currently open to individuals who have been part of their brain injury rehabilitation program. All of the staff I spoke with have had interaction with these kids at one point or another during the course of their stay, and as I mentioned before, they truly care about them.
Everyone was incredibly knowledgeable about concussions and brain injury, and I wouldn’t hesitate to send someone I know to this hospital. If you’re familiar with my story and the amount of doctors I encountered who did nothing to help me, I am quite the critic when it comes to hospitals and clinics — and I give these guys an A+!
Before I headed back home, I had a quick opportunity to meet the staff at the Maryland Brain Injury Association! Thanks to Alicia Cignatta, Outreach Coordinator, for reaching out to me on Twitter to connect!
I also had the pleasure of meeting Caitlin Exline Starr, Manager of Support Services, and Bryan Thomas Pugh, Executive Director. They all took time out of their morning to come in early to meet with me as it fit into my busy schedule! I had a wonderful time chatting with them, and hearing about what they’re doing in MD!