Midwest Book Award Finalist

Midwest Book Award, Award winning authorI am SO thrilled and excited to let you know that Midwest Book Awardmy book “Life With a Traumatic Brain Injury: Finding the Road Back to Normal” was recently awarded a silver foil seal at the Midwest Book Awards in the health category!

Purchase an autographed copy with a silver foil seal on the cover HERE!!

Here is the official Press Release:

The 26th Annual Midwest Book Awards has recognized “Life With a Traumatic Brain Injury: Finding the Road Back to Normal ” by Amy Zellmer as a finalist in the category of Health.

The awards recognize quality in independent publishing in the Midwest. This year’s awards attracted 198 titles, entered in 30 categories. All books were copyrighted in 2015 and entered by publishers from MIPA’s 12-state Midwestern region (Illinois, Indiana, Iowa, Kansas, Michigan, Minnesota, Missouri, Nebraska, North Dakota, Ohio, South Dakota, and Wisconsin).

Winners were announced at the Midwest Book Awards Gala on May 13, 2016 at the Olson Campus Center at Luther Seminary in St. Paul, Minnesota.

The competition, sponsored by the Midwest Independent Publishing Association, is judged by experts from all aspects of the book world, including publishers, writers, editors, librarians, teachers and book designers. They select award winners and finalists based on overall excellence.

Life With a Traumatic Brain Injury: Finding the Road Back to Normal is a collection of short stories originally published on Huffington Post to educate and bring awareness about traumatic brain injury.

“Traumatic brain injury causes your world to implode. The effects of TBI are far-reaching and long term; touching every imaginable part of your life, the lives of those you love and those who love you. Amy weaves her own story and the stories of others who have sustained a TBI with important education that provides both help and hope.” ~ Lee Woodruff, New York Times #1 bestselling author and contributor, “CBS This Morning”

“It is thrilling to see so many talented authors and publishers of high quality books in the Midwest,” said Midwest Book Awards Chair Sherry Roberts. “I look forward to the Gala, where we will be recognizing the achievements of all the finalists and winners as well as celebrating the strength and vitality of independent publishing in the Midwest.”

About MIPA

Midwest Independent Publishing Association serves the Midwest publishing community to promote excellence in publishing in the Midwest. Through educational programming and other cooperative efforts, MIPA helps members learn more about publishing and book production, promotion and marketing. MIPA also provides networking

 

Suggested Books | Reading for Concussion & Brain Injury

Life With a TBI authorI am a bit of a bookworm, have been since childhood. I would devour books in a weekend, and I typically read every night before bed. It’s my retreat, my relaxation tool, my escape from reality.

When I first suffered my TBI, I was unable to read for months.  My vision was blurred/doubled and I couldn’t retain the last chapter I read and would often have to go back and re-read what I already had read. It was SO frustrating, and it took away the one comfort habit that I had.

One of the very first books I read as I began my slow recover was Chicken Soup for the Soul: Recovering From Brain Injuries. Not only were they short reads, they allowed me to see inside other survivors lives, and reassured me that I was not alone. I believe this book is what led me down the path of writing my own book: to help others not feel alone!

The second book I read was My Stroke of Insight. This book is written by a neuroscientist who suffered a stroke, and was able to write about her experience. The part that touched me most with her book was her positive attitude towards recovery, and that even though some parts of us no longer work the same, we can embrace the others parts that we discover along the journey.

I get asked often if there are any books out there to help people dealing with concussion, brain injury, stroke, etc. Of course, everyone should own my book Life With a Traumatic Brain Injury: Finding the Road Back to Normal LOL … but there are some really great books out there by other survivors as well as medical professionals.

I have compiled a list here of my top 10 books (plus mine) with links to purchase on Amazon. I know many of these authors personally, and have read the majority of the books. Those I haven’t read, I have heard nothing but positive reviews from other survivor friends. I hope that you find your next favorite book!!

 

** this post may contain affiliate links **

My Washington DC Trip | A Brief Recap | {VIDEO}

I just returned from a two-week advocacy trip to Washington DC and wanted to create a brief recap video for you!

Huge thank you’s to:
Brain Injury Services of Virginia
BIS Recovery Group
Debi Gale’s Mind Matters Groups
Argosy University of DC
ADAPT Clubhouse
INOVA Fairfax Hospital Trauma Survivor Network
Brain Injury Association of America
Senators Klobuchar and Franken
Jenna Wolfe from NBC

Many thanks to all of my supporters who either offered financial support through my GoFundMe, or those who supported me emotionally, and also by sharing my campaign with friends and family and asking for their support. I truly wouldn’t have been able to make this amazing advocacy trip without each and every one of you!!

I am in the process of putting together a few more trips in the near future, including Los Angeles, Las Vegas, Arizona, New Mexico, Colorado, Texas, and Illinois.
You can help support my advocacy endeavours in several ways:
– Purchase a copy of my book
– Purchase a copy of my e-book
– Purchase a TBI Awareness Bracelet
– Make a donation

TBI awareness, TBI, brain injury, traumatic brain injury, head trauma, concussion

Stephanie and I with Jenna Wolfe from The Jenna Wolfe Show, sporting our TBI Awareness bracelets in Washington DC!

7 Tips For Attending Brain Injury Awareness Day in Washington DC

TBI, brain injury, traumatic brain injury,

Amy meeting with her State Senator, Al Franken, in Washington, DC during Brain Injury Awareness Day.

March is National Brain Injury Awareness Month, and on March 16th we will celebrate Brain Injury Awareness Day on Capitol Hill in Washington DC. (which also happens to be my birthday, so talk about the ultimate birthday present!!)

The day will include a brain injury awareness fair with more than 50 exhibitors, a Congressional briefing, and a reception to celebrate the Congressional Brain Injury Task Force as well as Brain Injury Awareness Month. The schedule and room locations are:

* 10am-2pm: Brain Injury Awareness Fair, Cannon Caucus Room, Cannon House Office Building

* 2:30-4pm Congressional Briefing, “It’s Not ‘Just’ a Concussion”, Capitol Visitors Center, Congressional Meeting Room North CVC 268

* 5-7pm Reception Celebration, B338 Rayburn House Office Building

The very first Brain Injury Awareness Day on Capitol Hill was held in 2002, and is is hosted by the Congressional Brain Injury Task Force co-chaired by Reps. Bill Pascrell, Jr. (D-N.J.) and Thomas J. Rooney (R-Fla.). It is put on in partnership with the Brain Injury Association of America. I will be meeting with my Senators while I am in DC and asking them to join the Task Force!

This year will be my second time attending BIA Day, and I wanted to offer my fellow survivors who are planning to attend some tips on planning out your day!

  1. Map Your Route

Whether you’re arriving by Metro, Taxi, or car, it is important to do your research and know where you’re going. Make note of which building you need to be at, and program the addresses into your GPS using the “walk” option, or print out maps and highlight your path. NOTE: You will need to go through security screening to enter any of the buildings at the Capitol. You can not bring in food or beverages, and your bags will be scanned and/or checked by hand. Please be prepared, and feel free to tell security you have a brain injury and may need some assistance from them.

2. Plan Your Schedule In Advance

Understand how much energy you’re willing to exert and plan accordingly. If you can only give yourself and hour or so, I highly suggest you put your energy towards the Awareness Fair. You will be able to meet with vendors who support brain injury awareness, you’ll meet fellow survivors, interact with the Brain Injury Association of America, and pick up some free swag to take home with you! The Congressional Briefing can get a bit long, and can be over stimulating to listen to, however, you will learn a lot and get updates on what is happening across the country with brain injury awareness, detection, and prevention. The Reception is a fun time to hang out with the new people you have just met, as well as eat some tasty treats.

3. Wear Comfortable Shoes

It’s important to understand that there is a lot of walking involved when you’re at the Capitol. You will walk from your car, Taxi, or Metro stop to the building, and also between the buildings. Distance is deceiving when you look at a map, so it’s good to be prepared for a lot of walking!

4. Stay Hydrated & Eat A Snack

Hydration is critical to brain health, so bring a water bottle and fill it up once you’re through security. There is also a cafeteria located inside the building where you can purchase beverages as well as a meal or snacks.

5. Bring A Notebook & Pen & Tote Bag

You will likely meet a lot of wonderful new people, and you’ll want to grab their business card and/or make notes. You will be taking in a lot of new information, and I suggest writing things down so you don’t forget, and make notations of things you want to follow up on. A tote bag will come in handy to carry around the free swag that you pick up (pens, etc).

6. Pace Yourself & Be Prepared For Overstimulation

Get LOTS of rest the night before. This is going to be a busy day with lots of people, walking, and interaction. Bring with you any comfort items you may need such as sunglasses and earplugs. Take breaks and pace yourself, you’re under no obligation to see it all and do everything on the schedule!

7. HAVE FUN!

Amy Zellmer is a professional photographer, author, and creative business coach living in Saint Paul, MN. She is an active member of the Brain Injury Association of America and sits on their Advisory Council. Her first book, “Life With a Traumatic Brain Injury: Finding the Road Back to Normal” is available as an e-book with a “pay what you can” option for the month of March. You can find her on Huffington Post and at Faces of TBI.

TBI | Concussion | Care Package

Healing Boxes, traumatic brain incjI recently partnered up with one of my beautiful friends from the UK and founder of Healing Boxes, Grace Quantock. She began Healing Boxes in 2012 after a friend was in a car accident and recovering in the hospital. She states:

“Living with a chronic illness, I was bed bound. Although I couldn’t visit, I wanted to do something for my friend. I felt helpless in that moment, and it was awful. I was too far away to visit and felt there was little I could do.”

Until I realized I could send my support, in a healing, heartwarming box of cheer. It sounded so simple, so obvious. But as I began to search for the right gift, I was utterly disheartened by what little was available and appropriate. A card and flowers was just not enough.

Living with a chronic illness myself, I knew exactly what was needed. So I searched and packaged up a variety of lovingly chosen items that my dear friend would be enjoy and be able to use. The very first Healing Box was born.”

Healing Boxes became more than a business, it became a mission. Grace wanted to spread comfort, joy, passion, and love to every person in need. She assembled a board of fantastic people who were passionate about helping others, and formally made Healing Boxes a “Community Interest Company” (CIC). A CIC is a UK-based type of company that is specifically designed to use their profits and assets for the public good and the benefit of the community. Basically, it’s a business and charity all rolled into one neat little package, or in her case, a box.

Grace is currently living, and thriving, with an often debilitating illness. She knows firsthand the emotional and physical roller coaster that accompanies diagnosis and life struggle. This is exactly why I knew Grace was the perfect person to partner with for a Traumatic Brain Injury (TBI) Healing Box. Having suffered through a concussion myself, I knew exactly what it was like. You feel alone, isolated, scared, emotional, and mostly you just want someone to reach out to you with love and compassion.

The TBI Healing Box is filled with items lovingly selected by myself and Grace specifically for individuals dealing with Traumatic Brain Injury or Post Concussion Syndrome. All of the items are hand made in the UK and include:
1. Ear plugs, to help keep distracting and overwhelming noises to a minimum.
2. Eye mask, to help with light sensitivity.
3. Ice pack, to help with sore muscles, as well as headaches.
4. Meditation CD, specifically designed to help with sleep
5. Palm Stone, as a reminder of the love and support that was sent your way
6. Teapigs Tea bags, for a comforting and soothing cup of tea
7. Wellness Journal, to journal your recovery, keep track of to-do items, and more!
8. Hand Written note, from myself to you, to encourage you on your journey to recovery
9. A TBI awareness bracelet to wear proudly
10. A code to download a digital version of my book,  “Life With a Traumatic Brain Injury: Finding the Road Back to Normal” 

All of this is lovingly packaged in Wales, UK and delivered to the door of your loved one. Imagine the gratitude they will feel, knowing someone has thought enough to send them this Healing Box, specific to the invisible injury that they are currently feeling overwhelmed and struggling with!!

If you have a loved one you care about but feel:
* you want to do something for them but don’t know what to do
* you are scared and frustrated
* you feel out of your league on the scope of their injury
* you don’t understand their injury
* you don’t live nearby to help or visit
* you want to help, but don’t know how

This Box is designed for a loved one you care about, who has either recently suffered a concussion or brain injury, or is still continuing to recover from one (recovery can take years). I personally know the struggle and these are the exact items I have used to help me with my recovery. It is hard to know what to do for someone when it’s an invisible injury that you can not see or understand. By sending them a beautiful box full of useful items, designed just for what they are dealing with, you will show them just how much you care.

Best of all, you are not only helping a loved one suffering with TBI, you are also helping to support a community with the purchase of a Healing Box. For more information, please visit: www.healing-boxes.com/tbi

Healing After Trauma

Instagram-RewiredLifeTourI am honored to be one of 17 bloggers on the Rewired Life Virtual Blog Tour, hosted by Audrey Michel. If you have already registered to receive all 17 of these amazing blogs, you can do so here: www.audreymichel.com/tour 

When Audrey first approached me to be a part of the tour, and explained that the focus was “LOVE yourself, HEAL your body & mind, CELEBRATE life” I knew that I had get involved!

Having suffered a traumatic brain injury (TBI) in February 2014 after slipping on a patch of ice in the driveway and landing full force on the back of my skull, I have witnessed first-hand what our bodies (and minds) are capable of during times of extreme pain, fatigue, and distress.

I was shocked at the reaction of many of my so-called friends, telling me “It’s just a concussion” and to “get over it — it’s no big deal.”

WHAT?! Since when are concussions no big deal?!
(answer: never — they ARE a big deal…. and can be life-altering with major consequences).

To put things into perspective, here are some of the things I was dealing with:

* My cognitive processing system was badly damaged — I had no idea how to use an ATM machine, my microwave, or a gas pump
* I had visual problems — later to be diagnosed as double vision and convergence problems
* My short term memory was pretty much non-existent — I literally got lost and had panic attacks driving home from familiar places I had driven to hundreds of times before
*  I had a constant, stabbing pain in my head where my skull had made impact with the pavement — and would later be told I had permanent nerve damage which results in the entire left side of my head going “numb”
* I was suffering from a great deal of aphasia — which is a condition where you can not come up with the word, or you say a completely wrong word
* Dealing with Neuro fatigue is one of the most challenging things I have ever had to deal with in my life…… and learning how to balance life/work/fatigue
* Dizziness and Vertigo often kept me from being able to do anything.… it is a completely debilitating side effect of head trauma.

The entire first year after my fall is pretty much a blur…. while I had to continue going through the daily motions of running my business in order to keep a roof over my head, I spent far more hours in bed than I did anything else.

At the one-year mark, I had begun to think I was never going to get better…. I was living with a perpetual hell inside my head and no one could understand what I was dealing with. One by one friends slipped away…. leaving me to feel even more isolated and alone than I could ever have imagined. I contemplated suicide (not because I was lonely, but because I was in SO much pain, and couldn’t see myself ever getting better).

I made a risky and bold move — I wrote a very personal blog post about what I had been dealing with for the past year — and published it on the Huffington Post. What happened next was completely amazing!

I began receiving emails from strangers all over the world — thanking me for putting into words exactly how they had been feeling. We were fighting the same fight, I was no longer alone!!

I knew it was time to start healing my physical and emotional trauma, so that I could continue to be a voice for TBI:Rewired Life Tour - Amy Zellmer

  • Eventually I began to start up my daily yoga practice again…. and low and behold the dizzy and vertigo slowly started to subside (not completely gone… but manageable).
  • In addition to yoga, I also began weight training in an attempt to get my strength and endurance back up. Sitting dormant for over a year is extremely hard on your body, and mine needed to get moving again.
  • I embraced essential oils, which I had already been using. I didn’t take one single prescription med during my recovery. I regulated my pain, mood, and everything else by using EO’s.
  • My neurologist finally sent me to a Cranial Sacral Therapist ….. I firmly believe CST saved my life…. it helped relieve all the pressure and fogginess inside my head (which also contributed to relieving the dizzy/vertigo problems).
  • Writing has been an emotional outlet……. a therapy if you will. Knowing that my words help others cope with their TBI gives me something to look forward to.
  • I also began seeing a Therapist several times a month about 10 months into my recovery, after I had a major panic attack (though I had no idea that’s what it was at the time). We determined I was afraid of hurting myself again…. with snow and ice being a trigger for me.
  • I honor my body, and give it grace when it needs extra sleep. I am starting to understand my limits and don’t force myself to get things done.
  • Additionally, I honor my mind, and no longer get frustrated when I can’t quite figure out how to do things or come up with words. I understand that my recovery is still in progress, and may continue to be for many more years.

Having an attitude of gratitude for everything good in my life (as well as the challenges that i have gone through, which taught me valuable lessons) is critical for my emotional healing. I encourage every one of you reading this to start a daily gratitude practice….. simply write all that you’re grateful for in a journal at the end of the day. It has power effects on your well being!!

As Part of the virtual blog tour:
Check out yesterday’s blog post by: Christine Tremoulet
And remember to check out tomorrow’s post by: Whitney Gale

I also invite you to watch my free webinar on Essential Oils.… it is not at all a sales pitch….. it is a completely informative webinar that teaches you how to use essential oils, as well as what and how they can be used for! CLICK HERE for instant access!

Also, be sure to grab a FREE CHAPTER from Audrey Michel’s bookRewired Life” by clicking HERE.

Amy Zellmer is an advocate for TBI awareness and frequently contributes to the Huffington Post. She also recently published her first book “Life With a Traumatic Brain Injury: Finding the Road Back to Normal“. She currently has a GoFundMe campaign to raise funds to speak in Washington DC for Brain Injury Awareness Day on Capitol Hill.

Rewired Life Blog Tour Headshots

 

 

WCCO News Radio Interview | March is Brain Injury Awareness Month |

Amy Zellmer on WCCO news radio talking about Brain Injury Awareness MonthThis past Sunday I had the pleasure of being on WCCO news radio to talk all about traumatic brain injury and continue bringing awareness to the forefront!

I was invited by Roshini to be on “News and Views With Roshini Rajkumar to kick off Brain Injury Awareness Month!

We had an amazing conversation, and I am so grateful for the opportunity to talk publicly about TBI!

Some of the highlights from our conversation:

  • My TBI story
  • Dr. Bennet Omalu
  • My upcoming trip to Washington DC
  • Coping skills
  • TBI doesn’t discriminate
  • Symptoms of concussion/TBI
  • The TBI Tribe on Facebook
  • TBI statistics
  • Prevention tips

Amy Zellmer is an advocate for TBI awareness and frequently contributes to the Huffington Post. She also recently published her first book “Life With a Traumatic Brain Injury: Finding the Road Back to Normal“. She currently has a GoFundMe campaign to raise funds to speak in Washington DC for Brain Injury Awareness Day on Capitol Hill.

 

Meeting Dr. Bennet Omalu

Dr. Bennet Omalu, concussion, tbi Last night I had the experience of a lifetime meeting Dr. Bennet Omalu at the Beth El Synagogue here in the Twin Cities!

Omalu is portrayed by Will Smith in the movie “Concussion” which is a true story of Dr. Omalu and his journey in discovering CTE and taking on the NFL over the dangers of repetitive head trauma.

I was able to shake his hand and have him autograph a book for me. His smile is genuine, and he has a laugh that can make even the Grinch smile!

Throughout the evening he commented on how we are intelligent Americans, and intentionally hitting our heads in a game is just not intelligent. There are many false assumptions that simply wearing a helmet will help prevent head injuries…. even though we know this is not true as we watch NFL players repeatedly endure CTE.

He also addressed the issue of youth sports, and that is our responsibility to ensure their safety. We do not allow children to smoke until 18, drive until 16, drink until 21…. yet we allow them to endure repetitive head trauma as young as 8 years old….. where is the intelligence in this thinking?

Bennet is a dynamic and passionate speaker, and I am so blessed to have had the opportunity to hear him speak.

*More to come…. stay tuned!Dr. Bennet Omalu, concussion, tbi

Amy Zellmer is an advocate for TBI awareness and frequently contributes to the Huffington Post. She also recently published her first book “Life With a Traumatic Brain Injury: Finding the Road Back to Normal“. She currently has a GoFundMe campaign to raise funds to speak in Washington DC for Brain Injury Awareness Day on Capitol Hill.

 

Help Amy Advocate TBI Awareness in Washington DC

TBIamyheartsMy trip to DC is to educate, advocate, and raise awareness about Brain Injuries, and is supposed to start in just 10 days!

We still have quite a ways to go, and I really need your help spreading the word!

I’d like to share some facts about the trip. Although it’s long please take a minute to read.

I will be speaking at or attending:

1) Brain Injury Association of VA Conf Richmond 3/5

2) Petersburg VA TBI support group 3/8

3) Brain Injury Services Recovery Group 3/9

4) BIS Volunteer Banquet 3/9

5) Brain Matters Cog Rehab group- all 4 groups 3/10

6) The Tribe get together and meet with press 3/14

7) Argosy University Neuropsychology doctorate students 3/15

8) Dinner and “Beyond Laughter and Tears” preview with TBI survivors from around the country in town for event on Capitol Hill and with congressional members and staff 3/15

9) Capitol Hill Brain Injury Awareness Day 3/16

10) Brain Injury Services Adapt Clubhouse 3/17

11) Community Systems Kraft Klub 3/17

12) Trauma Support Network INOVA Fairfax Hospital 3/18

13) Individual meeting with congress people (Including Al Franken & Amy Klobuchar)

tbiamypinkMy Costs include:

1) Gas from MN to VA and to all of speaking engagements and back home

2) Hotel from Mar 3 (2 days to drive) thru Mar 21 (including 2 days to drive)

3) Food for the entire time –

I’m staying in lower cost hotels that have fridge, microwave, free breakfast to save money.

4) I still will need to pay rent at home even though I’m taking off work and I don’t get paid if I’m not working.

5) GoFundMe and WePay take almost 10% in feesTBIamygreen

Things to consider:

1) I get paid for none of this, I do it because I care!

2) The exposure and information gained will benefit all of those with TBIs

3) The “price” I will pay after this long trip to recover will take many, many days.

4) I’m willing to do this for YOU…will YOU help make it possible.

Please consider donating to my go fund me campaign to make this possible AND share on your personal pages with a message how important awareness is to you.

DONATE HERE: gofund.me/xfjngha4

 

An Evening With Dr. Bennet Omalu | Minneapolis

Don’t Miss this once-in-a-lifetime opportunity as the next installment of the Inspiring Minds Speaker Series takes place on Thursday, February 25th at Beth El Synagogue in Saint Louis Park.
Dr. Bennet Omalu brings to the stage a rare combination of humility and fervor, as he shares his story on becoming one of the biggest disruptors in the history of sports and medicine.
omalu
Beth El is pleased to work in collaboration with the Minnesota Brian Injury Alliance on this important evening, embracing their mission to work towards a world where all avoidable brain injuries are prevented, all non-preventable brain injuries are minimized, and all individuals who have experienced brain injury can maximize their quality of life.
concussion movie, will smith, nfl, tbi, brain injury
Commissioner Ed Ehlinger, MD, MSPH will moderate a Q&A with Dr. Omalu as part of the evening following the general presentation.
Seating is limited. More information and tickets are available at www.besyn.org/concussion or by calling 952-873-7300
__________________________________________________
Check out my recent blog posts that include my thoughts on Dr. Omalu and the movie “Concussion”
__________________________________________________
By now you are probably aware that I am heading to Washington DC in March for Brain Injury Awareness Month. I am still seeking sponsors, and I have also set up a GoFundMe campaign. If you could take a moment to check it out, and share it with your circles it would mean SO much to me!
Advocacy is SO important in spreading awareness about concussion and traumatic brain injury! Unfortunately, there are travel expenses and time away from the studio involved, so any and all donations are GREATLY appreciated!
You’ve been an amazing supporter, and I am grateful to have you in my Tribe!
You can donate to my GoFundMe here: http://www.gofund.me/xfjngha4